Researchers and clinicians are ready to bring this potential treatment to Hunter Syndrome patients. We urge everyone to get involved to help raise needed funds to make this a reality. We are all in this journey together and we'd like everyone’s participation. Every penny counts -- even a change box at work that raises $50 brings us one step closer. Together we can do this and get a step closer to finding a cure. Please share this information widely. We are a registered 501c3 foundation and your donations are tax deductible (IRS Tax ID #46-4296623). 100% of your donations will go towards gene therapy. Contact us for more information about setting up a fundraiser. To donate, click on the link below. We appreciate your help!!
Together Saving Dany
Finding and Funding a Cure for Hunter Syndrome
Funding for MPSII gene therapy so far has been able to breed mice and colonize them by stages of disease. At this point, we need to generate monies for future stages of the study which will include brain involvement and studying cognitive improvement. The goal is to start human clinical trials in 2015. MPSII foundations and parents are actively working with the FDA to make sure everything is done in an expedited fashion.
Whether you’re an individual or a business, we’re grateful for any amount you can give, no matter the amount.